Stitch Glitch! - Diep Flap Reconstruction Week 4

Section of my tummy scar...healing nicely at 4 weeks!

I measured my abdominal scar. Guess how long it is?  If you said 23 - 1/4 inches, you are correct! Yes, my scar is nearly 2 feet long. Wow. That was a big incision.

I know I said week 3 was pretty boring, as far as recovery goes. Well, week 4 decided to add just a little bit of excitement. A piece of glue came off my incision on my abdomen and the incision was still a little sore there, and oozing a bit. I didn't think much of it, just put some gauze over it to protect my clothes and got on with the week. It got a little red, and kept oozing. There was a hole about as big as a pencil eraser. Throughout the week, it seemed to improve, and I was seeing my surgeon soon, so I just figured I would ask him about it. Monday morning (April 14) I went for a walk, and walked more normally than I have since surgery. It felt pretty good to be moving more easily. When I got home, the little opening had leaked more than before, and looked worse as well. I also had a reddened lump under my tummy incision nearby.

Some minor complications with an incision the size of my abdominal incision are not terribly uncommon. Tuesday morning (April 15) I went to see my surgeon and he took a look at it. All those stitches underneath my skin are in the process of dissolving (apparently they take about 6 weeks to disappear). Since I am at week 4, he said the stitches were breaking apart, and sometimes they can work their way near the surface. My body, in all likelihood, is reacting to a stitch and treating it as a foreign body, and thus, is not healing in that spot. He got gloves and a little packet of instruments and some gauze and told me he would remove the stitches that were causing the problem.

I couldn't really see what he was doing, as I was laying on the table at this point. I did raise my head once in awhile to check it out. I may not have been able to see everything, but I could sure feel it! He re-opened a little section of the incision, and probed around to find the stitches that were the culprits and remove them.

Me: "Ouch!"
Surgeon:  "Does that hurt?"
(Really??? You are cutting into a tender incision without any localized anesthetic!)
Me:  "Yes, a LOT."
Surgeon: "Sorry."

Don't get me wrong, my surgeon is incredibly gentle, but this did hurt. That Lamaze breathing from so many years ago still comes in handy!  I came home with iodized tape (for packing wounds) to put on the incision opening for 3-5 days, and then I will be putting Neosporin on it to keep it moist, covered with a piece of Aquacel (absorbent pad infused with silver to fight infection) while it heals. I also have an appointment in a couple of weeks to make sure it is healing well. The adventure continues!  Oh, and the doctor said, the reddened lump I was worried about was just skin irritation and some scar tissue forming underneath the incision. Scar tissue starts to peak, apparently, at 6 - 8 weeks. He said massaging the incision could help.

After 4 weeks, I am off baby aspirin and no longer have to sleep exclusively on my back. Since I am a side-sleeper, this makes me happy! I am wearing a compression garment during the day (I could probably write a whole post about my love/hate relationship with Spanx...but not today!) My doctor says I no longer have to wear the compression garment, but it does help with the swelling. He said I may want to wear one when being more active (going to the gym, hiking, etc.) over the next several months, as I will continue having the swelling for some time. He said in 6 months I will be mostly healed. But right now, I can increase my activity level and work on getting back to normal. Aside from my stitch glitch, things are progressing normally. Once the incision heals, I will probably meet with my surgeon in a couple of months to make a plan for phase 2, which will include any touch-ups to the new breast (NAC or nipple-areola complex), breast lift on my natural breast if I want it, any liposuction or fat grafting to improve symmetry, and any revisions to the abdominal incision. These touch ups are done on an outpatient basis with a 1-2 week recovery. Tattooing of the NAC complex takes place after phase 2 touch-ups have healed. I have heard that these revisions can take a good result to a great result. After all I have invested in this process, I think I am going for greatness!

Some people look at me like I am crazy to have gone through all of this, but let's put it in perspective. My cancer treatments and related procedures went from July 2012 - September 2013.  This reconstruction process with take up most of 2014. And then, I am done. No procedures down the road related to implants and their complications (capsular contracture, implant failure and replacement, etc.) If I am cured of cancer and live another 30-40 years or so, I say this is definitely worth it.  I am happy I am doing this. I am already pleased with the results.

For more on my Diep flap experience:
Diep Decisions! Diep Flap Reconstruction
Diep Flap Surgery & Recovery - Week 1
Diep Flap Reconstruction Recovery - Week 2
Diep Flap Reconstruction Week 3 - Recovery Can Be Boring

Breast Cancer Awareness Month - My Walk Through Breast Cancer

Artwife - September 2012

It is here again - October, the month where athletes add pink to their uniforms. I confess I have more awareness of breast cancer than I ever wanted. It dominated the past 16 months of my life! I am not comfortable with the roles of spokesperson, victim, or survivor, but thought in honor of the month, I would share a little of my experience. I have nothing brilliant to add to so many who have boldly shared their information in online chats, blogs and more. Many, many women have given me information, support and encouragement through sharing their experiences either in person or on the internet. Their positive attitudes and strength helped me on many a sleepless night!

I was diagnosed with breast cancer in June of 2012. I found a lump through a self-exam. My treatment regimen included surgery, chemotherapy, radiation, and herceptin. I finished treatment in August 2013, and had my port removed in September. If you are facing treatment and wonder about getting a port, I loved having mine! With 17 treatments and only one arm available for IVs after lymph node removal, having a port was definitely a blessing.

I made the first cut!

My hair loss was predicted to be 100% based on the chemotherapy I was receiving. Sure enough, two weeks after the first treatment, my hair was coming out by the handful. Shaving my hair was not as bad as I feared. It was the one thing I could control. I decided when to shave it, how, who, etc. I made the first cut, and still have my little braid. My husband and son did the rest!

What teenager wouldn't want to cut off mom's hair?

I always wondered how I would look with a mohawk.

Back in the day, we called this "new wave."

It was a LOT of hair!

Me with my husband, and best friend extraordinaire!

I had surgery to remove the cancer at the end of July 2012. Then I started chemotherapy in September. I had 6 cycles of taxotere and carboplatin, and 17 cycles of herceptin.  Chemo is tough--it really is systemic. I had head to toe symptoms, but as a good friend reminded me, that means the drugs are working! Best advice I can give for chemotherapy?  Get through it any way you can! I had people help with cleaning and meals. I used the nausea meds for several days each cycle. I drank flavored water (thanks Mio!) and ate things like rice and Jell-o on the bad days. I slept a lot and tried to get out for a walk once in awhile. I could always taste tomato juice, so I drank that as well. I was happy to leave chemo in the rearview before New Year's.

Lunch at my first chemo, when I still had hair and tastebuds!

My chemo infusions took between four and five hours. I read, slept, watched DVDs, played cards, and ate lunch during my treatments. Getting chemo never particularly bothered me during the infusions, it was the week after that was tough! My treatment regimen was given every three weeks.

Getting my wig cut and styled.

Before I shaved off my hair, I went wig shopping. It was actually fun to try on so many styles! I haven't been to my own hairstylist in over a year, so I felt I could justify spending money on a good wig. Mine was synthetic, which meant it held its style, and I only had to wash it in a sink about once a month. That was a blessing, since I didn't feel very good during chemo. My hair began growing back in January 2013. By May, I was done with the wig...too hot and uncomfortable for summer. My hair is not as curly as everyone promised it would be, but at least it all came back!

Washing my hair in the sink!

I finished chemotherapy December 27, 2012, and started radiation in February 2013. The most difficult part about radiation is the fact that you have to go 5 days a week, so it feels like that is all you are doing. The treatments are short. I had a couple of preparatory appointments that involved getting my tattoos, and getting the machine alignment all set for my treatments. The actual time of receiving radiation is very short. I counted once during the radiation cycles, and the longest "zap" was about 25 seconds, with some lasting only about 10 seconds. I received radiation from a few different angles each treatment.  My radiation team was so much fun...they made it easier to be there. I finished in March after 25 cycles.

Me by the machine that gave me my radiation treatments.

Ringing the bell! It was great to be done with radiation!

I had some skin side effects from radiation including one really huge blister, redness, and some raw skin. A few weeks after treatment, I went through a lot of peeling. To help my skin, I used Aquaphor and Eucerin. I also used Mepilex at the end when my skin was pretty raw. Talk to your nursing team...they are a great resource for getting you through all of your treatments.

An autumn outing during chemotherapy.

Sun feels good on a bald head, and so does the hot water in the shower! No matter what I was going through during my cancer treatments, I could usually find some small thing that was positive!  And I was always grateful that there were treatments available for me.

My family, friends, and my faith were keys to my coping ability during my months of cancer treatments. I can never thank them, or God, enough for all they have done for me.  I believe in the power of prayer to strengthen both emotionally and physically. I have felt it.

For those of you facing cancer, I have this to offer you:  treatments end, hair grows back, bodies heal, and life goes on. Live every day...you only get one shot at life!

For those of you who haven't had this lovely experience in your lives, get your cancer screenings! They may save your life!

My other writing related to my cancer:

When Clouds Get in the Way

The Art of Living in Thanksgiving

The Art of Distraction

Balancing Acts

Another Year, Another Adventure

Click here for more information about dealing with breast cancer.